Genetics Home Reference: Your Guide to Understanding Genetic Conditions
Genetics Home Reference provides consumer-friendly information about the effects of genetic variation on human health.
This Community of Practice is here for you and most importantly used and built by you. We will continually add trusted resources as you bring them to our attention and organize them in a manner that makes it easy for you to access as needed.
These resources have initially been curated from the existing resources and staff knowledge in the NNLM and other trusted organizations, resources and tools for library and health workers. If you have any additions, comments or suggestions – please use this feedback link to let us know right away.
| Resource | Description | |
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Office of Minority Health |
The Office of Minority Health Resource Center online library catalog provides access to the nation’s largest repository of information dedicated to the health of minority populations within the United States and its territories. |
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SciStarter |
SciStarter is an online community dedicated to improving the citizen science experience for project managers and participants. Over 3,000 projects and events are searchable by location, scientific topic, and age level, and by joining SciStarter, members can track their contributions and provide valuable feedback. |
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Society for Women's Health Research |
The Society for Women's Health Research focuses on health conditions for which women and men experience differences in risk, presentation and treatment response, as well as health issues specific to women such as pregnancy and menopause. |
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The All of Us Research Program |
The All of Us Research Program has a simple mission. We want to speed up health research breakthroughs. To do this, we’re asking one million people to share health information. In the future, researchers can use this to conduct thousands of health studies. |
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The Ohio State University Wexner Medical Center - "Patient Education" |
The Ohio State University Wexner Medical Center offers an easy to use health resource database with the encouragement to "Make Better Health Decisions" MLA's CAPHIC counts this as one of the top 4 most trusted health webstes for general health information. |
| WEBINAR: Citizen Science Month (and Byond!) @ Your Library |
Citizen science can build upon your existing STEM programs or introduce a whole new world of STEM engagement opportunities for library patrons. From tracking species migrations to measuring light pollution or searching online for new galaxies, citizen science invites patrons to engage in REAL research projects and contribute to scientific knowledge. |
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WebJunction: The learning place for libraries |
WebJunction builds the knowledge, skills and confidence of library staff to power strong libraries that are the heart of vibrant communities. A program of OCLC Research, WebJunction is free and welcome to all libraries to use, regardless of size, type or location. |
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Funding for this Consumer Health Community of Practice has been provided by the All of Us Research Project. Find the contact information for the Engagement Coordinator whom facilitates partnerships in your location.